Rhena Writes

Tag: health

  • Shake and Shimmy, if you dare!

    Daily writing prompt
    What’s the most fun way to exercise?
    View all responses

    The most fun way to exercise is to leap from line to line in the crosswalk. Much to the consternation of the waiting drivers, late for work or for a first date or on their way to sit with a sick relative and not knowing that the feat of athleticism that they are witnessing. The leaps are glorious indeed, a performance of the first order. They, the unwitting audience.

    No. The most fun way to exercise is double dutch (which I cannot do but which I never get to watch enough of), tearing up the grass slip and sliding (worth the earful about damaged lawns later), throwing rocks in the creek (to the the annoyance of the water spirits).

    No. The most fun way to exercise is to bop across the nearby park, to Stevie Wonder’s I Wish, with your dog, having grown used to such antics, as the oblivious partner, more impressed by the scent of another dog’s urine than by your side step, side step, spin move.

    The most fun way to exercise is to step out of the shower and shake yourself off like your dog might but rarely does and then to laugh until your belly jiggles like a bowl full of jelly and then laugh some more because jelly belly and isn’t this human body so funny?

    The most fun way to exercise is to open the shade by the front window and shake and move and groove and shimmy to Bill Wither’s Lovely Day and then Diana Ross I’m Coming Out and then Beyonce’s Halo and when your son tells you that’s embarrassing, you tell him that that’s only because he doesn’t have moves like this and so he joins you to prove otherwise and the drivers at the stop light by your house can probably see you (you opened the shade anyway) but that doesn’t matter because they don’t even know the greatness they are part of and maybe you should take this show on the road through all of the crosswalks across the land.

  • What Olympic sports do you enjoy watching the most and why is it women’s gymnastics?

    Daily writing prompt
    What Olympic sports do you enjoy watching the most?
    View all responses

    Last summer, I took a much needed week-long holiday to the beach with my family. The trip was right at the end of an eight week stretch of two types of chemotherapy (administered every other week) and right before I was going to start three months of a second type of treatment (administered weekly). The only thing I really had energy for was a few hours on the beach in the morning. I’d then go to the couch for the hottest parts of the day. Fortunately, the couch had a TV in front of it. Fortunately, this was the week of the 2025 Summer Olympics in Paris. Fortunately, the TV could have four different stations playing simultaneously.

    In the thick of chemo/ cancer brain fog, I didn’t have the focus to be able to read much or paint or write or really do many of the things that bring me joy but involve some attention. I was pretty weak and my tastebuds were completely obliterated so that even eating together with my family was not the most enjoyable. The chemotherapy had also made my skin photosensitive so when I was at the beach, I was under the shade when I could be and usually completely covered up when I couldn’t. Oh, and I was also bald so I was sensitive not only to the sun but I felt chilly at the slightest wind or temperature drop.

    But watching the Olympics, indoors? That I could do. The narratives that emerge feel so fundamentally human that I could pick up on them and even enjoy them through my brain fog. When I mentioned women’s gymnastics in my title, I was really just doing that as an attempt at a cheap laugh. The truth is that this past summer, I enjoyed all the sports. I, too, was wondering, “who is this male gymnast in glasses who seems to be meditating but hasn’t competed yet?”. And was stunned when Steve came out to dominate the pommel horse in the last rotation. I was also smiling along with Snoop Dogg as he c-walked holding the Olympic torch. I also occasionally ended up watching hand ball and wondered, “What on earth is this?”

    At the time, I was too foggy to put it all together but now, I can see that part of me, I think, was really grateful to have a week of being constantly reminded over and over of what human beings are capable of and what, specifically, our bodies can do.

    I’m in the radiation portion of my treatment. It’s exhausting. But I’m walking and exercising everyday. I’m sticking to my routines which allows me to have moments of spontaneity and growth. And I can feel myself getting stronger each day. I’m not saying that I’m ever going to be an Olympic athlete. I’m middle aged. Even without cancer, I’m far past my physical prime. But it’s not Olympic gold that I’m working towards here. It’s being able to get back in the ocean, swimming and battling the surf with my kids. It’s being able to walk my son to school. It’s being able to enjoy a few sun salutations. It’s having the energy to be able to say yes when one of the kids wants to dance. Or even when I want to.

    In fact, you know, that one Australian breakdancer’s routine doesn’t seem all that out of reach…

  • Has anything changed?

    Daily writing prompt
    How have you adapted to the changes brought on by the Covid-19 pandemic?
    View all responses

    A few weeks ago, I had the bizarre experience of being in a very, very bougie place in DC. I’ve mentioned before here that I grew up in DC and many of my life experiences have been shaped by having observed power; by having spent a lot of time in close proximity to the very center of empire but not being a part of it. Being, rather, apart from it. In any case, as I’ve gotten older, I’ve had fewer and fewer occasions to experience that world again. Which is all to say that it had been a while (and definitely since before the pandemic) that I had been in one of these “finer” corners of the DMV. It was very surreal. It was as if the pandemic never happened in that world. At least, it had that veneer. No one was in masks. There were no written signs about safety protocols. No containers of hand sanitizer out. Of course, if I had poked the surface, I’m sure I would have found changes and adaptations. Probably many of the staff lost loved ones or livelihoods or ways of life but they are probably also trained how to maintain appearances as if nothing changed. 

    I remember in the thick of the pandemic and lock-downs, watching movies or TV shows from before the pandemic and having to take a moment to remember, “Oh, yeah, we didn’t always wear masks everywhere, we didn’t always not shake hands.” I remember just watching old footage of crowded places made me feel a little uneasy. I read recently that even today, studios follow strict protocols to keep the actors from getting sick. So while they are presenting worlds and stories where the characters show no signs of there ever having been a pandemic, the key grips and food services and hair and makeup are still masked up. 

    Being in high-end DC had that feeling. I was being presented a world in which everything was care-free and easy. But behind the scenes, the people creating this world were not enjoying its ease. 

    It was head spinning when the next day, I went to take my girls to get their hair cut. I cut their hair (and my son’s and my husband’s and my parent’s) for the first year or so of the pandemic. It’s not easy work. So I was grateful when I was able to bring them back to the woman who’d been cutting their hair before the pandemic. She has her own salon attached to her house just outside the beltway in a largely immigrant community. It’s very small and worn down a bit, but we like it. During their haircuts, she was masked the whole time and when I checked in with her at the beginning, she mentioned how business hasn’t been good. It seemed to never have picked up to what it was like before the pandemic. 

    This is why I say that it feels like nothing has changed and everything has changed. Many have had no choice but to adapt in order to maintain an illusion so that others don’t have to adapt at all. 

  • The first hour of my day.

    Daily writing prompt
    What are your morning rituals? What does the first hour of your day look like?
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    My alarm goes off at 6 am. I should probably move that back to 5:55 to give myself five minutes of lazing and stretching. The soles of my feet and heels always ache and burn when I place them on the floor and take my first few steps. I’m trying to figure out what stretches or movements I can do before getting out of bed so that there’s less pain. Or else maybe just to give myself a few more moments of being awake and not suffering. I know. I know. All life is suffering. I cannot delay these moments.

    I change from my shorts into pants and then use the bathroom, clean my night guard, scrape my tongue, and brush my teeth. I check my phone to see how many hours I slept the night before. I realize now, typing this that this is a silly habit, born of a distrust of myself and my own body. I know, for example, that I did not sleep well for one long stretch last night. Yes, my watch confirmed it, but so did my body and my memory. Does the idea of my watch monitoring me in my sleep in fact disrupt my sleep? Would my sleeplessness bother me less if my phone hadn’t confirmed it? Is the technology helping or hindering me in my quest for rest? Do I need more data to answer these questions? Or do I need to trust myself more?

    I retrieve my glass of water from my nightstand and my yoga mat from the closet. I roll out the mat on whichever floor space near windows is available and set the timer for ten minutes for some meditation, light stretching, and sun salutations. I am unnecessarily attached to the idea of doing this part of my routine near the windows where I can peer out at the trees and, on some mornings, see the moon. It seems so picturesque, like something from IG accounts that I have scrolled. But the truth is that all of that is a distraction from my attempts to use this time to listen to my body and to give it what it needs. As for the moon? I do not think she cares one way or the other whether I am near a window to greet her, to admire her beauty. She is there, somewhere. And that is enough.

    I roll up my mat and set my tea to steep before I: take my medicine (trying to remember to be grateful that my morning dose is one tiny pill these days), let the dog out (and check to make sure the older children are awake and getting reading for school at the same time), and return my mat to its place in the closet. I finish making the tea (you can see my more in-depth take on this central morning ritual at this blog post: The Doctrine of Chai) and settle into my morning spot on the couch. I’ll alternate between writing and chatting with the kids and my husband and seeing them all off for the day. I’ll feed the dog at some point in there, but otherwise I’ll use that time to sip my tea and water and, most importantly, to write.

  • More of this: a practice.

    Daily writing prompt
    What do you wish you could do more every day?
    View all responses

    The sun, the wind, the tree outside my window are working in concert to create a moving shadow on my computer monitor base and desktop. It’s a performance, directed by Mother Nature. On the other side of the window, blades of grass shimmy and shake to the beat of the breeze. It beckons a memory from before language: light and dark, movement, rhythm. I wish I could show you more of this every day so that together, we might feel the same raw, timeless innocence.

    A few months ago, I started to take guitar lessons. I’m going to not equivocate or judge my abilities. This isn’t about that. I try to practice every day and I enjoy it, immensely. Every so often, I am able to enter that coveted flow state with guitar where I am able to focus on that one singular task, moment, note, chord, song, skill for a moment or two. Maybe even a few minutes. I enjoy the routine of the daily practice: stretch, meditate, scales, work on the assigned piece, and maybe learning a few new notes or a cord. I enjoy that each day I can see a little bit of my progress and a deepening understanding.

    I recently figured out that the tempo I play a given piece is only as fast as my slowest transition. The same way a chain is only as strong as its weakest link. Rather than try to speed up the transitions that I most struggle with, I slow everything else down. This has allowed me to actually enjoy both the “easier” parts as well as the trickier ones. I can luxuriate in each note and cord, letting the easy, open notes ring a little longer. Inside those notes is where I find grace. This is where I learn that slow, fast. One is not better than the other. They just are.

    But I do not wish I could play more guitar everyday. In fact, each day, I set a timer and put down the guitar when it goes off. I do not obsessively try to “fix” whatever I’m working on. My goal is not to extend my practice to the length of the timer. My goal is to limit the time. And in doing so, I trust that there is always tomorrow’s practice. I trust my own faithfulness to the practice. I do wish that I could bring more of that trust throughout other parts of my day. Every day.

    I’m also finding time for exercise and movement each day. I do stretching and a few sun salutations when I wake up. (The moon was particularly beautiful from my kitchen window next to where I roll out my yoga mat this morning.) My dog and I enjoy a walk or two through the day. And this past month, I’ve started to integrate some Barre Empowered routines into my week. When I think about exercise, it’s something I kind of dread even though moving my body is something that I quite enjoy. And so I look for the moments of grace when I exercise too. Can I take it a little easier on myself today if I’m low on energy? Yes. Sure! I’m grateful for Maya, the founder of Barre Empowered, whose messaging is more supportive and, well, empowering than most exercise videos I’ve tried in the past.

    I don’t wish I could do more exercise everyday, but I do wish I could extend more gratitude to my body.

    I write, too, everyday. And I read, because otherwise my writing would just be a monologue rather than a conversation. Last year I read The Word: Black Writers Talk About the Transformative Power of Reading and Writing (edited by Marita Golden). In his chapter, Nathan McCall said, “Yeah, I had a notebook. You could buy little things from the canteen, and I bought a notebook and started writing down what I was feeling. Prison ain’t exactly the best place to be telling somebody your deepest feelings, talking about your pain. So I was writing stuff down. And I realized that it made me feel better, whatever I said, whether it was a paragraph, whether it was a page. Sometimes I would just write and it would be disjointed and everything, but it would make me feel better, So the more it made me feel better, the more I did it. Then the more I did it, the better I became at it. Then I began to see it become a challenge to get my feelings down with the depth and preciseness that I felt.”

    My wish is that everyday I believe in the value of my words, my feelings, my stories and my writing that emerges.

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  • Is a port just a port?

    I could feel something happening on my lower abdomen, close to my pelvis. I saw the blue paper a few inches from my face and lights and blurry shapes through the clearish plastic to my right. Nothing else. I heard the voices of the nurses and techs talking to each other and some music. I’m fine I told myself. This is just paper and plastic. I turned my head upward slightly to look at the opening to the paper and plastic just above where I was lying on the operating table. What if I push this whole thing off of me? I thought. Would I be able to? Can I even move my body? There is enough air, I reminded myself. Soon, I’ll have a sedative in my IV and this will all be fine, I thought. But what if I don’t make it that long? What if they’ve forgotten about me? Calming words started to escape from my brain, fleeing alongside logic. I heard a slightly louder voice from the other side of the room.

    “Are you just getting nervous over there?” Joy, the nurse, asked. Is she talking to me? How did she know? Words were still floating somewhere outside of my head and body, flitting about out there with its buddy logic, having abandoned feeling to be on her own inside my body.

    “Are you feeling nervous there?” Joy asked again. Oh! Maybe she is watching a screen. Maybe the screen tells her my heart rate and my respiration too. Maybe Joy is an empath. Maybe both and all of this is true.

    “I’m just feeling a little claustrophobic,” I croak from the operating table, trying to gauge how loud I needed to be in order to be heard through the paper and plastic sterile shield. Hands were quickly enlarging the opening, rolling the paper from above my head to eye level. My hot breath escaped and cooler air touched my face.

    “Something is on my body. I don’t know what it is,” I tried to explain the feeling of lying on a table and not knowing what’s being done to your body. But words were still on the lamb.

    A voice: “We use your body like it’s a table.” I shouldn’t be comforted by this, but somehow I was. It was the straightforwardness of it. This is your body. We are using it. For this purpose. And somehow it was comforting even though no one could see my face nor any of my skin even really (wrapped, as it is, in warmed blankets) save for the six or so square inches of my left chest, below my collar bone where the port has been situated ever since it was installed in a similar operating room at a different hospital eight or so months ago.

    One of the nurses leaned down so that he was eye level to me. “If you need something like that, you can tell us,” and he offered to take my glasses. I was grateful that he phrased his help and care in this way. He didn’t question why I didn’t say something, just offered.

    I thought that maybe I could hear the doctor who I met in the prep area an hour or so before enter the room. I could feel the IV in my left arm being fussed and fiddled with. It wasn’t painful and I knew that Joy was likely getting ready to push the sedative into my body and I could begin to anticipate the not caring. And then, perhaps, the greatest comfort, more so than having the drape pulled back so I could breathe, is when Joy said in her very serious voice, “nobody touches this patient until she is sedated.”

    Joy gets it.

    Another beat passed and I felt the cool liquid enter my vein. Soon, a bitter taste filled the back of my throat.

    “I can taste it,” I announced. Apparently, my words found and opening and returned back into my brain. So did logic.

    “That’s the sign of a good IV,” Joy assured me. “This next one is going to burn a little.” But already I didn’t care. Or maybe I almost wanted the burn, knowing that what would follow would be complete not caring. I barely even noticed when the doctor injected the numbing agent. Still, Joy assured me, “this is the worst part.”

    I thought I heard someone at some point say something like, “I’m sure the chemotherapy is the worst part.” And then clarified, “that’s some nasty stuff they give them.” Or something like that. But maybe I dreamt that part. In a way, I feel proud that I endured something that even a medical professional (and one who is currently cutting into my skin no less) acknowledges as awful.

    I could feel slight tugging at moments. And then someone held the port where I could see it. It was a purple triangular hunk of titanium bobbing a bit at the end of the thin, white plastic tube and covered in droplets of blood. My blood.

    “See?” Joy said. “It’s out.”

    “Can I take it to show my kids?” I asked her, still sedated.

    “No, my dear,” she responded. “This is biohazard.”

    “Yeah. I’ll just draw it for them,” I answer.

    “Just draw a line with a triangle at the end.”

    I thought I could hear bits of conversation. The surgeon and the nurse discussed the scar from when the port was installed. “If she scars, she scars,” the doctor said. I could feel the stitches going in. The right side of my chest, where my breast was removed a few months back, is entirely numb. No nerves there anymore. And I’m finally used to the odd way it feels to touch the skin and have no sensation.

    And like that, the surgeon was done and gone. Ten minutes they told me. Someone finished bandaging me up and then they took the “after” x-ray showing nothing to pair with the “before” x ray of the triangular port in place.

    When the port was first placed, it was uncomfortable and at times even painful. Still, it was better than the alternative of the chemo medicines burning the veins in my arms as they entered my body through an IV. And the discomfort didn’t last forever. At times, I even forgot I had a port, although I never really wanted to touch it, so disconcerting was the feeling of that bump of metal under my skin. I say that at times I would forget it was there, but those moments were brief. I wondered how much my body and mind had adapted to having this in me without me even realizing. After my chemotherapy treatments were complete, I still had to have the port flushed at least every six weeks. Tracking this, scheduling the flushes, getting to the office, all of that took a large amount of mental space. I wondered too, if my body was expending energy to accommodate my port in ways that I wasn’t aware. Would I feel different after having it out?

    It’s been two days now and I don’t know how different I feel. Is my energy flowing more smoothly on that side of my body? Maybe. I’ll give it some time. I’m still healing.

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  • Untethering from Social Media

    I deleted Facebook years ago and Twitter a few after that. A few weeks ago, I the last of my social media apps: the mostly image-based Instagram and their partner text-based Threads. Social media, the whole of the internet, is, I believe, mostly a gift to the world. But my brain, my whole person was formed before the internet, much less social media, existed. In other words, I’m not equipped for handling it. My mind simply doesn’t move fast enough to keep up and, in attempting to, I was doing damage. It was as if I was lining up on the track next to Florence Griffith Joyner each and every day and expecting myself to keep up. My hamstrings – nay my whole body would have taken a beating if I ever even dreams of going up against Flo Jo but, more importantly, my self-esteem would have been obliterated. And it was. 

    I wasn’t too keen on the idea of deleting social media. The other day, my six-year-old son was staring out of the car window into the massive sky above. “Mom,” he said, “I don’t like to think about the universe.” I told him I get that. He confirmed that it’s the vastness that makes him feel small. It’s dark and lonely out there in the universe. I was so used to having and being on social media that I thought that deleting it would untether me from the earth and send me out there into the universe, alone, cold, and in the dark. 

    When I first came across posts on social media by patients in cancer treatment, it made me feel less alone.  Somehow, in spite of the fact that I wasn’t really looking for it, I’d come across people posting about their experiences with cancer. There was even a woman preparing for her mastectomy at around the same time that I was. I wasn’t alone. 

    Perhaps you can see where this is going. As soon as I clicked on a couple of cancer posts, the algorithm latched on. Soon, a good portion of my feed was cancer. And I couldn’t help myself but read and click. I’d try to close the app and just the c-word alone would catch my eye. I felt an obligation to consume it all. 

    One of the prayers that I had when I was going through treatment was this: that my suffering makes someone else’s a little less. There are certain aspects of Catholicism that are engrained in me and that’s one of them: offer it up. Offer up your suffering so that it has meaning if not for you, then at least for someone else. For the most part, I was thinking about my daughters in those moments, praying that somehow me going through all of these trials would save them from a similar fate. In the early days of my treatment, the genocide in Palestine was dire and so my prayers were also for mothers there. In my moments of pain rooted in my own body attacking my breasts, all mothers and children and their bonds and their bodies and suffering all became mixed together. 

    And some of that responsibility and connection carried over to my fellow cancer patients on social media. Somehow, it was my duty to keep reading all of these threads. But reading, engaging them seemed to created more until everything was cancer content. It’s about as much fun as it sounds. 

    This was all in the midst of me, in-person, going with some regularity to a literal cancer center where I would sit in waiting rooms nearly full with other people who possibly also had cancer. And at one appointment, my doctor mentioned (without violating HIPPA) that he’d been recently seeing more of the type of cancer that I have. Later, as I moved into the recurrence prevention phase, he mentioned that he had a patient in a very similar situation to me. At the very least, it’s possible that the doctor was able to use some of what he learned treating me to better care for the other woman. 

    These are connections that I couldn’t get on social media. 

    And so it was that I had it all wrong. When I finally cut the tether, I didn’t float out into the vast, cold universe. Rather, I floated back down to very real, solid, warm earth. 

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