Rhena Writes

Tag: breast-cancer

  • Those who ignored, disregarded,counted me out

    Daily writing prompt
    Share a story about someone who had a positive impact on your life.
    View all responses

    Many upon a many a time … I was sharing something that I was excited and passionate about. Many upon a many a time, I was ignored. Or disregarded. Or told I was wrong and told that I’d never get it right. Maybe there was laughter, the cold kind. Sometimes there was a simple turning away. Sometimes there was a red pen, the words, “no it doesn’t”, an interruption.

    I’m not going to pretend that those moments didn’t hurt. They did. A chilly shot of the realization that this person couldn’t give me what I needed in that moment. But brief hurts were necessary to learn what I needed, to learn how to ease the pain or, better, replace it with joy. I had to learn how to warm myself up.

    Now I’ve learned that it’s those people who missed out.

    I learned, from them, how to care for myself, how to validate myself. And perhaps most importantly: how to see myself.

    The idea that “I can’t rely on anyone else” sounds cynical without the follow up of, “I can rely on myself.” And that’s what I’ve learned to be able to do. It’s not just relying on myself for material needs but for emotional needs too. I can’t harbor ill will towards these people. It was their actions that revealed to me just how awesome I am, after all.

    One day last, I was in the waiting room of the cancer center not too long after I was diagnosed with breast cancer. I knew that a mastectomy was possibly in the cards for me. Another woman, a bit older than me, walked past me to her seat and I noticed that she had one breast. The top she was wearing made it very obvious: it was a stretchy knit with horizontal stripes. In other words, she wasn’t doing anything to disguise her mastectomy. She looked healthy and strong. She looked like she was just going about her daily business.

    Over the months since then, I’ve thought about that woman often. And I still feel, at times, a little bit uncomfortable with my new body. I worry that I’m going to make other people uncomfortable or that someone is going to ask me questions that I don’t feel prepared to answer. Still, I have to go out in the world. And so I think about that woman in the waiting room and how I didn’t even have to exchange words with her. Just her presence, being out in the world without apology makes me feel like I can do it too.

    Today, as I was walking my son to school, I noticed another woman doing a double take when she saw my chest. I started to reach for my shirt to straighten it out and make it less obvious. But then I remembered the woman in the waiting room, just going about her business and also that I had more important things, like chatting with my son to do. Thinking about the woman who was surprised by my uneven chest as I was walking home, I thought that the look on her face probably mirrored mine when I saw the woman wearing the striped shirt in the waiting room. And so I decided that perhaps the woman who was looking at my chest this morning maybe also was recently diagnosed or has a loved one who was diagnosed. Maybe me being out in the world without a breast reconstruction, without really trying to hide my lopsidedness, looking relatively healthy and strong … maybe my presence gave her a little spark of hope in a dark time. Just as the woman in the waiting room passed her candle flame on to me, I hope that I’m able to pass it on to other women.

    And so we carry on. One light at a time.

    ************

    If you enjoyed what you’ve read here, please check out other posts. Likes, shares, and reposts help get my writing out to where it needs to be. I’m also grateful for financial support. 

  • Running piglets and cancer

    Daily writing prompt
    What makes you nervous?
    View all responses

    Looking back to how I was before I had cancer, I would say that what made me nervous was everything. What makes me nervous a year post diagnosis? Nothing. 

    That answer is obviously too absolute for reality. But it’s a starting point. 

    I first learned the phrase “running piglet” from the book Chinese Medicine for the Mind: A Science-Backed Guide to Improving Mental Health with Traditional Chinese Medicine by Nina Cheng. “Running piglet defines a sudden rushing sensation that ascends to the chest and throat and a panicky feeling.” (P.89.) This very clearly describes how I experience nervousness or anxiety. The book even has an illustration of a distressed person with three yellow piglets in their stomach, ready to scamper upwards and into a pink trail leading up to the throat at any moment. I find this image to be very helpful in that it both contradicts the idea that nervousness is “all in my head” but also that it makes it seem so concrete and innocuous. I have little piglets running in my gut. I can deal with that. It was also a comfort to know that Chinese Medicine had a phrase and image that directly described what I was feeling. Meaning, in other words, that it was common enough to merit such a phrase. My chi might have been as chaotic as porcine babies  but at least I wasn’t the only one. 

    Perhaps if I lived in China, I would have visited an herbalist to help me getting my chi under control. But here, in the United States, instead, I got cancer. I know that this is a scientifically inaccurate way of looking at what’s happened to me over the last year. But I’m a writer, not a scientist. And I’m a human. I’ve needed to find the story that would best bring wholeness and unity to my person: body, mind and soul. So here it is. 

    Those little pigs were trauma and nerves and unexpressed, well, everything that I had been living with. They’d been gathering in my stomach over many decades. From time to time, I’d be able to settle and quiet them by getting them drunk, or overfeeding them, or distracting them in myriad ways like overworking or overworrying. But the little pigs were still there, unexpressed, unacknowledged and just aching at the chance to run all through my body, disrupting the flow and balance of my chi. 

    In the western scientific way of thinking about cancer, it’s considered a disfunction of the body. My cells were growing out of control. Somehow my genes were expressing themselves poorly or incorrectly. Which, honestly, shouldn’t come as a surprise in a western world where honest self expression and communication is discouraged. I know I’ve often felt disconnected from my body. I am not I’m getting anything particularly bold or unknown when I say that women’s bodies (and specifically Asian women’s bodies and biracial bodies) are continuously objectified in our culture. It takes its toll on us mentally and physically. 

    But you know what is also true underneath all of that surface-level objectification and mistrust of the human body? My body is incredible. My mind had been completely cut off from understanding my body and yet it still managed to take care of itself. To take care of me. 

    The cancer was my body, after all. 

    My body was creating cancer cells to mop up all those running pigs that were disrupting my chi and balance and life. All that trauma and unexpressed emotion had been running rampant for too long and my body had enough. The cancer gathered it all up and dumped it into my breast. Why there? One of the first things I said after my diagnosis was, “at least I’m done with using my breasts.” I’d already used them to nurse my babies. It’s not coincidence that my breasts have always been the most objectified part of my body. 

    When I first had my mastectomy (which was unilateral), I spent a fair amount of time thinking about how I would look with only one breast. I had already made the decision that I didn’t want to have reconstruction. More surgery and then the maintenance involved just seemed like, well, a lot to deal with. I did end up buying a few tops and a bathing suit that would de-emphasize the lopsidedness of my chest. And I’m still not one hundred percent happy with my bra situation. (I was offered to go to get fitted for a prosthetic but I wasn’t interested.) Still, I was kind of fiddling around with what shirts to wear. But the more I looked in the mirror and got used to how I look with one breast, the less and less concerned about it I’ve been. I realized that what was going on what that I was considering things like what top to wear to de-emphasize my lopsidedness because I was concerned that my body might make other people uncomfortable. Imagine that? I just went through one of the toughest years of my life, and I’m STILL overly fixated on what my body does to other people. Dang. Such is the power of misogyny. Fortunately, as soon as I realized that this was part of my thinking, I was able to shift it. Because the truth is: I’m a total badass and I have the scars and body to show it. 

    There are other aspects of cancer that have helped me cope with nervousness over the past year. Leading up to my surgery, I was very anxious and nervous. By going through it, though, I learned to ways to deal with that. Talk about it. Write through it. Return to focusing on my breath. I gained a mantra coming out of surgery: I am alive. And perhaps most of all, I learned the incredible power of my body and that I can trust it to take care of me. I’d long thought that the mind-body relationship was unidirectional, with the mind controlling the body. I woke up from surgery marveling that it’s a two-way street. 

    So am I really done with being nervous? Of course not. Each emotion along the whole spectrum serves its purpose. Just yesterday, the piglets woke in my belly as I watched my son run precariously close to the edge of the water at the Baltimore Harbor. But the sound of my voice calling his name lulled them back to sleep. se to the edge of the water at the Baltimore Harbor. But the sound of my voice calling his name lulled them back to sleep. 

    **********

    If you enjoyed what you’ve read here, please check out other posts. Likes, shares, and reposts help get my writing out to where it needs to be. I’m also grateful for financial support. 

  • The stranger within.

    Daily writing prompt
    Describe a random encounter with a stranger that stuck out positively to you.
    View all responses

    When I was first diagnosed with breast cancer, I had to be transported from the hospital to the radiation center for treatment. The people who transported me usually sat with me while I waited to see the doctor or to receive the treatment. Needless to say, the people who were driving me places were strangers to me. But I had a few encounters with them that stuck out to me.

    The first was a younger woman who had driven the ambulance-like vehicle. She asked me what kind of cancer I had as we were waiting outside of the radiation room. After I answered her, she started telling me about how her mother had breast cancer too. I had just received the diagnosis and still had no idea what my treatment plan would be. She talked about the chemotherapy her mother went through and she said that the one thing was to try to eat whatever I can to keep my strength up through the treatments. The fact that she took the time to share with me her advice and to share with me a story of someone on the other side of their experience with breast cancer gave me hope. And through my treatment, I kept her words in mind about keeping my strength up. Because the advice came from a patient (through her daughter) it was probably more powerful than even what the doctors and nurses said. And I remembered them when the chemotherapy made everything tasteless.

    Another transportation person made me laugh out loud, great belly laughs that left me breathless right when I needed that. He also shared this wild story about when he was in the marines. It involved a very specific type of beer that is only made and sold in Wisconsin. It happened to be one of my favorite beers when I lived there. Our encounter was very, very brief, but we connected on such a niche subject that it made it feel somehow preordained. It made the world seem small, the specifics of my life not all that unique after all. And that’s exactly what I needed to feel in that moment.

    One other young man who helped my transport also had a very short interaction with him. He asked me almost right away, “Are you a teacher?” It was such a pointed question, that I started racking my brain, “Was this a former student?” No, he wasn’t. By way of explanation he said I just seemed like a teacher. I took it as a compliment and I think he meant it as such. Later on, one of the women who cleaned the hospital rooms and I got to chatting. She talked about some of her recent difficulties. “I’m usually shy, but you have a good energy.” Both of these comments were also what I needed to hear in those moments. Mostly because everyone I’d been seeing saw me primarily as a patient and I was beginning to see myself just as a patient. I had months (years?) of interactions ahead of me where I would be reduced to “patient”. Both of these interactions with strangers reminded me that I’m human first. They told me that even in this role as a patient and in these medical settings, I was more than just someone to be helped, that my presence or energy could also help someone else. I guess you could say that in a way, these interactions empowered me to see myself as more than a patient.

    Lastly, dear reader, you too are a stranger to me. And yet, here you are, reading my words. And maybe I am becoming something less of a stranger to you. Just as I am becoming less of a stranger to myself.

    ***********

    Likes, shares, reblogs are welcome and help us all become less strange to one another! (As do tips … Thanks!)

  • Untethering from Social Media

    I deleted Facebook years ago and Twitter a few after that. A few weeks ago, I the last of my social media apps: the mostly image-based Instagram and their partner text-based Threads. Social media, the whole of the internet, is, I believe, mostly a gift to the world. But my brain, my whole person was formed before the internet, much less social media, existed. In other words, I’m not equipped for handling it. My mind simply doesn’t move fast enough to keep up and, in attempting to, I was doing damage. It was as if I was lining up on the track next to Florence Griffith Joyner each and every day and expecting myself to keep up. My hamstrings – nay my whole body would have taken a beating if I ever even dreams of going up against Flo Jo but, more importantly, my self-esteem would have been obliterated. And it was. 

    I wasn’t too keen on the idea of deleting social media. The other day, my six-year-old son was staring out of the car window into the massive sky above. “Mom,” he said, “I don’t like to think about the universe.” I told him I get that. He confirmed that it’s the vastness that makes him feel small. It’s dark and lonely out there in the universe. I was so used to having and being on social media that I thought that deleting it would untether me from the earth and send me out there into the universe, alone, cold, and in the dark. 

    When I first came across posts on social media by patients in cancer treatment, it made me feel less alone.  Somehow, in spite of the fact that I wasn’t really looking for it, I’d come across people posting about their experiences with cancer. There was even a woman preparing for her mastectomy at around the same time that I was. I wasn’t alone. 

    Perhaps you can see where this is going. As soon as I clicked on a couple of cancer posts, the algorithm latched on. Soon, a good portion of my feed was cancer. And I couldn’t help myself but read and click. I’d try to close the app and just the c-word alone would catch my eye. I felt an obligation to consume it all. 

    One of the prayers that I had when I was going through treatment was this: that my suffering makes someone else’s a little less. There are certain aspects of Catholicism that are engrained in me and that’s one of them: offer it up. Offer up your suffering so that it has meaning if not for you, then at least for someone else. For the most part, I was thinking about my daughters in those moments, praying that somehow me going through all of these trials would save them from a similar fate. In the early days of my treatment, the genocide in Palestine was dire and so my prayers were also for mothers there. In my moments of pain rooted in my own body attacking my breasts, all mothers and children and their bonds and their bodies and suffering all became mixed together. 

    And some of that responsibility and connection carried over to my fellow cancer patients on social media. Somehow, it was my duty to keep reading all of these threads. But reading, engaging them seemed to created more until everything was cancer content. It’s about as much fun as it sounds. 

    This was all in the midst of me, in-person, going with some regularity to a literal cancer center where I would sit in waiting rooms nearly full with other people who possibly also had cancer. And at one appointment, my doctor mentioned (without violating HIPPA) that he’d been recently seeing more of the type of cancer that I have. Later, as I moved into the recurrence prevention phase, he mentioned that he had a patient in a very similar situation to me. At the very least, it’s possible that the doctor was able to use some of what he learned treating me to better care for the other woman. 

    These are connections that I couldn’t get on social media. 

    And so it was that I had it all wrong. When I finally cut the tether, I didn’t float out into the vast, cold universe. Rather, I floated back down to very real, solid, warm earth. 

    Visit my Ko-fi page to drop a tip in my cup.