I deleted Facebook years ago and Twitter a few after that. A few weeks ago, I the last of my social media apps: the mostly image-based Instagram and their partner text-based Threads. Social media, the whole of the internet, is, I believe, mostly a gift to the world. But my brain, my whole person was formed before the internet, much less social media, existed. In other words, I’m not equipped for handling it. My mind simply doesn’t move fast enough to keep up and, in attempting to, I was doing damage. It was as if I was lining up on the track next to Florence Griffith Joyner each and every day and expecting myself to keep up. My hamstrings – nay my whole body would have taken a beating if I ever even dreams of going up against Flo Jo but, more importantly, my self-esteem would have been obliterated. And it was.
I wasn’t too keen on the idea of deleting social media. The other day, my six-year-old son was staring out of the car window into the massive sky above. “Mom,” he said, “I don’t like to think about the universe.” I told him I get that. He confirmed that it’s the vastness that makes him feel small. It’s dark and lonely out there in the universe. I was so used to having and being on social media that I thought that deleting it would untether me from the earth and send me out there into the universe, alone, cold, and in the dark.
When I first came across posts on social media by patients in cancer treatment, it made me feel less alone. Somehow, in spite of the fact that I wasn’t really looking for it, I’d come across people posting about their experiences with cancer. There was even a woman preparing for her mastectomy at around the same time that I was. I wasn’t alone.
Perhaps you can see where this is going. As soon as I clicked on a couple of cancer posts, the algorithm latched on. Soon, a good portion of my feed was cancer. And I couldn’t help myself but read and click. I’d try to close the app and just the c-word alone would catch my eye. I felt an obligation to consume it all.
One of the prayers that I had when I was going through treatment was this: that my suffering makes someone else’s a little less. There are certain aspects of Catholicism that are engrained in me and that’s one of them: offer it up. Offer up your suffering so that it has meaning if not for you, then at least for someone else. For the most part, I was thinking about my daughters in those moments, praying that somehow me going through all of these trials would save them from a similar fate. In the early days of my treatment, the genocide in Palestine was dire and so my prayers were also for mothers there. In my moments of pain rooted in my own body attacking my breasts, all mothers and children and their bonds and their bodies and suffering all became mixed together.
And some of that responsibility and connection carried over to my fellow cancer patients on social media. Somehow, it was my duty to keep reading all of these threads. But reading, engaging them seemed to created more until everything was cancer content. It’s about as much fun as it sounds.
This was all in the midst of me, in-person, going with some regularity to a literal cancer center where I would sit in waiting rooms nearly full with other people who possibly also had cancer. And at one appointment, my doctor mentioned (without violating HIPPA) that he’d been recently seeing more of the type of cancer that I have. Later, as I moved into the recurrence prevention phase, he mentioned that he had a patient in a very similar situation to me. At the very least, it’s possible that the doctor was able to use some of what he learned treating me to better care for the other woman.
These are connections that I couldn’t get on social media.
And so it was that I had it all wrong. When I finally cut the tether, I didn’t float out into the vast, cold universe. Rather, I floated back down to very real, solid, warm earth.
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Rhena Writes 